banner image

New Reseach Project


Parenting and Schooling Children with Ataxia Telangiectasia (AT) a Mixed Methods Survey: Exploring Parental Stress, Anxiety, Depression, School Engagement and Experience of Accessing School Provision and Support.


Research exploring the lived experiences of those parenting school age children living with AT; looking at parent engagement with school, access to funding and provision and the impact on parental mental health and wellbeing.


4 months

AT Society support:

Practical support in drafting, circulating and collecting survey and encouraging participation.

Recruitment Information:

Dear Parents and Carers,

My name is Lisa Williams and I am conducting a piece of research as part of my Masters in Research Methods in Clinical Psychology with the University of Hertfordshire. I am an Inclusion manager and SEMH support worker at a primary school in Hertford and have a keen interest in SEN and Inclusion.

Through my work over the past 6 years I have become increasingly aware of the expectations of primary school teachers and SEN practitioners to deliver an inclusive environment to all pupils. In addition to this I have also read widely around the topic of AT and have become involved with the AT-Society who support this piece of research.

Therefore, through conducting this research project, utilising survey methods I intend to collect data from parents of children and young people who are currently attending a mainstream educational setting, to include Early Year through to Key Stage 5 (Sixth form or Sixth form college) around their perspectives on parental wellbeing, inclusive practice, support and provision in relation to caring for a child who is living with AT. The aim is to gather information to add to the very limited body of research around the lived experiences of parents who are schooling a child with AT. The aim is to help improve educational experiences for such families.

Your support and contribution to this research is highly valuable and I would very much apricate it if you would participate in this survey research. In addition to this, I would also be very grateful if you could forward this email to other families you know that are supporting a child with AT.

Please note that participation is voluntary and anonymous and adheres to GDPR regulations. If you would like to participate please click on the link below, which will redirect you to the survey.

Thank you for taking the time to read this information sheet.

Kind Regards

Lisa Williams

The University of Hertfordshire

Tel: 07786981508

Email: [email protected]

Link to the Survey:

The teens wondered what was kept in the red shed on the far edge of the school grounds