Support for the family
The Aidis Trust are a national charity who provide people with disabilities with computer advice, information, assessments and equipment. The AT Society work in collaboration with the Aidis Trust to provide IT equipment.
Contact a Family provide support, advice and information to families all over the UK who have a disabled child
The Motability Scheme enables disabled people to exchange either their Higher Rate Mobility Component of Disability Living Allowance or their War Pensioners’ Mobility Supplement to obtain a new car, powered wheelchair or scooter.
Make a Wish is a national organisation that provides children with life threatening conditions the opportunity to have their wishes granted, for example going to ‘Disney land’ or meeting a celebrity.
The Starlight foundation also grants wishes for children with life threatening conditions
The Willow Foundation is the only national charity that provides psychological and emotional support for seriously ill 16 to 40 year olds through the provision of special day experiences.
Natspec is the membership association for independent specialist colleges providing further education for young people with learning difficulties and/or disabilities. You can search the website for appropriate colleges.
The ERN-RND is a European Reference Network established by the EU to support patients and families affected by rare neurological diseases (RND) which requires much specialised knowledge, treatment and resources.
Other AT organisations
Organizations around the world are working to increase awareness, provide information to families, and work toward finding a cure.
- Australia – BrAshA-T
- Brazil – Projeto AT/Brasil
- Europe – AT Europe
- France – Association Pour la Recherche sur l’A-T (APRAT)
- Germany – A-T info from doctors in Frankfurt
- Germany – A-T info from German A-T Family Group
- India – Email the Ataxia Foundation at [email protected]
- Israel – Association for Fighting A-T Disease
- Italy – National Ataxia Telangiectasia Association
- USA – A-T Children’s Project
- Japan – Ataxia Telangiectasia Project
- The Netherlands – Stichting A-T and Twan Foundation
- Norway – AT-Norge (AT- Norway)
Family Support: Bent Are Roenstad - Poland – Razem Zdazymy (Together We are in Time)
- Spain – Asociacion Espanola Familia Ataxia-Telangiectasia (AEFAT)
- United Kingdom (UK) Action for A-T
