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Celebrating me

Celebrating me

Inspirational stories from our AT Community 


Charlotte’s story

Hello my name is Charlotte. I am 24 and live alone with my two chihuahuas in a 2 bedroom bungalow in North Yorkshire and yes I am living with Ataxia Telangiectasia but even though I have this it is not my life.

I live alone due to the fact I lost both my parents but my mum always taught me one thing that I have always lived my life by and I believe has made me who I am. I am feisty, stubborn, independent, resourceful and I am not afraid to say what I think or be who I am but I am also kind, considerate of others and believe it or not, I get scared and shy sometimes too.

If you don’t mind I would like to share this lesson with you.

My mum always taught me that we are who we are, your condition does not make you, the wheelchair, the medication, the physiotherapists, the doctors, the hospitals none of that makes you. Yes you may think life will be easier without any of this and you may feel alone sometimes (I know I have) but we need to know we are never alone.

I love reading because it lets me escape reality for a while where I can immerse myself in the world of the book and the characters, imagine what they look like, what they sound like and how they interact. I love music and movies for similar reasons.

We have got to accept this condition we have but no matter what we are told, or how we feel, we need to believe we are strong and we can do this, but we will not let this or anything determine our lives and how we want to live it.

At the end of the day we all know we are ill to a different extent but there is one thing we all want no matter who you are, how old you are, or where you’re from. We all want to be NORMAL. We don’t want special treatment or to be singled out –  just think how humiliating and embarrassing that must be for someone.

So if you meet someone different, don’t call them names or be nasty just because you think it looks cool, just remember we are people too and we just want to be treated like any other person our age.