Our Support team
Our support team, Kay and Anne, are on hand 5 days a week to help and support families living with AT. From the shock of the initial diagnosis through to treatment and the challenges of everyday living, they can provide support, advice and advocacy for people with AT and their family, friends and carers. They can also liaise with and offer advice to professionals.
Kay and Anne can be contacted on 01582 760733.
This charity has been a lifeline to our family since 2007 when our lives were torn apart by this devastating condition. I don't know where we would be without their support, in a much darker place without a doubt. Every cloud has a silver lining and the charity provides hope for a better future, whilst providing much needed valuable support in the meantime. They have enabled us to meet and make lifelong friends with others similarly affected.
Getting a diagnosis
In the UK, all cases of suspected A-T are confirmed by submitting a sample of blood for laboratory tests.
Our Family Support team, Kay and Anne, are on hand to support families through the shock of a new diagnosis of Ataxia-Telangiectasia (A-T) or a variant of A-T.
AT specialist clinics
There are two AT specialist clinical centres in the UK, one for children at Nottingham City Hospital and one for adults at Royal Papworth Hospital, Cambridge.
Local health care
Local health care teams have a vital role in maintaining the health and well-being of children and adults with A-T.
Advocacy & support
As well as providing a 'listening ear' we can advocate for you to receive the services that you need.
The A-T Society can offer financial help to people with A-T through our Support Grants System.
Whether you have A-T or you are a parent, relative or carer, talking to others in the same situation can be a great help.