Clinical guidance booklet

In October 2014, the AT Society published the first ever clinical guidance booklet on treating AT. The guidance sections were written by experts from Nottingham City Hospital and by Professor Malcolm Taylor from the University of Birmingham and the booklet was written and edited by the AT Society. The clinical guidance booklet aims to ensure a consistent approach to monitoring and treating children with AT in line with current best practise. Once this is achieved, it is likely that it will lead to improvements in the health and longevity of people with AT. This document has been updated in February 2026.

The complexity of AT means that each child needs to be seen by a wide range of clinicians and therapists, but its rarity means that very few will know much at all about the condition. The clinical guidance booklet aims to ensure that for the first time there is a shared understanding of the symptoms and progress of the condition and a consistent approach to treating it, based on the experience of the world’s longest-established multi-disciplinary AT clinic in Nottingham.

While the document is primarily aimed at clinicians and other health professionals who have little first-hand experience of treating AT,  it is also relevant for those caring for children with AT, who want to ensure that they are receiving the best possible care.

If you are a professional treating a child with AT, please feel free to contact us for copies of this booklet to share with colleagues. If you are looking after a child with AT, we would encourage you make sure that the professionals treating your child locally have read the booklet.

However, it must be underlined that following the clinical guidance will not of itself ensure a successful outcome to any treatment. As the booklet itself says, there is much that we do not understand about AT and the ultimate judgement about treatment must be made by the doctor or therapist treating the child, in consultation with the child and his/her parents or carers.

If you would like a printed copy, please e-mail or phone us on 01582 760733.