Support for Professionals
One of the AT Society’s key roles is to provide information and support to the health, education and social care professionals who are working with people with AT and their families. Ataxia-Telangiectasia (AT) is a very rare condition with an estimated 200 cases in the UK. Most professionals will have limited knowledge or be unaware of the condition when a person is referred to them. Infact, they may not see more than one person with AT during their professional career.
Many thanks for coming to our staff meeting. It was very informative and everyone who attended felt that it was a valuable insight into how we can support Orla through her years at the school. I don't think that anyone had realised until then the complexities of her difficulties, and having the meeting has made everyone far more aware of her needs on a day-to-day basis.
How we can help you
Our family support team have in-depth knowledge of the condition gained over the years from working with AT families, healthcare and education professionals.
Confirming a diagnosis
In the UK, all cases of suspected AT are confirmed by submitting a sample of blood for genetic testing by Professor Malcolm Taylor's laboratory.
Health Care in AT
While there are currently no licensed treatments to modify the progress of AT, there is much that can be done to improve the health of someone with AT.
Education and AT
The AT Society can offer help and guidance to Schools, Colleges and Education Professionals to support the child and the professionals involved in their care.
What’s happening in Research?
Find out about the latest research projects we are supporting to develop better treatments and ultimately a cure for AT.