Support for Professionals
One of the AT Society’s key roles is to provide information and support to the health, education and social care professionals who are working with people with AT and their families. Ataxia-Telangiectasia (AT) is a very rare condition with an estimated 200 cases in the UK. Most professionals will have limited knowledge or be unaware of the condition when a person is referred to them. Infact, they may not see more than one person with AT during their professional career.
Many thanks for coming to our staff meeting. It was very informative and everyone who attended felt that it was a valuable insight into how we can support Orla through her years at the school. I don't think that anyone had realised until then the complexities of her difficulties, and having the meeting has made everyone far more aware of her needs on a day-to-day basis.
