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Brae’s story

Siobhan and Brian were told that one of their twins, Brae, had AT when he was just three years old. Compared to his twin, Brae looked ‘wobbly’ when he walked. When they received the AT diagnosis it was overwhelming: “We were a wreck. We just couldn’t compute what was happening to our lovely family”.

The AT Society immediately provided Siobhan and Brian with a lifeline of hope when there was nowhere else to go.  A home visit from the charity’s Family Support worker provided reassurance that they were not alone. The charity has continued to be close by their side ever since, providing expert care and advice with a human touch. When Brae and his family were faced with complex medical challenges, stresses over home adaptations to accommodate Brae’s changing needs, and confusion and worry about disability equipment in his active teenage years, they knew instantly who to call.