Thanks to the generosity of radio listeners, the Make Some Noise campaign, organised by the Global group of radio stations, raised a staggering £2,860,897 with more donations still to come. The A-T Society was so excited to be part of this year’s charity event which culminated in Global’s Make Some Noise day last Friday (7th October). Our small charity was given the most amazing opportunity to share our story to Global’s 24 million listeners and our families had their voices heard across 8 of the biggest radio stations in the UK.
In the run up to Global’s Make Some Noise day, 5 of our remarkable young adults with A-T, Merry, Jordan, Amy, Charlie and Ebony and their parents were invited to Global’s headquarters to be interviewed. Everyone gave open and honest accounts of what it’s like to live with the rare genetic condition and spoke out about how they are sometimes perceived by others. They did a fantastic job representing A-T.
Their parents gave frank interviews about the shock of receiving the diagnosis, explaining how much their lives have changed and how hard it can be to look to the future. All the families talked about how invaluable the support from the A-T Society and other A-T families has been. These interviews were aired on all of Global’s radio stations in the lead up to Make Some Noise day and on the day itself.
Between interviews, the families toured the different studios and learnt how radio shows are produced. They met several DJs including Tony Anstis who provided a few giggles and had an in-depth discussion with Charlie about football. The A-T Society’s chief executive and musical family, Rupert Prokofiev and his brother Gabriel, were interviewed on Classic FM. Rupert and Gabriel talked candidly about their experience as a family living with A-T, the death of their younger brother and their family connection to the famous composer Sergei Prokofiev. The A-T Society’s chief executive talked about the condition and how the charity helps.
In the lead up to Make Some Noise day, the offices of the A-T Society were buzzing with excitement, props and costumes for our Make Some Noise photo shoot (well, us taking photos outside our offices in the glorious sunshine!) and we were proud to see other families making their own racket and posting their photos too.
On Make Some Noise day our fundraising team, Suzanne and Sophie, represented the charity on air and were so good that they even got to read the news! One A-T family also came to the studios and had the surprise of a lifetime when their hero, Michael Bublé, popped in to meet them during their radio interview on Heart. Our A-T family interviews were featured throughout the day and their emotional stories certainly captured the hearts of the listeners, helping to push donations to nearly £3m.
Since the radio interviews aired, the A-T Society has received calls for advice, information and even a potential new diagnosis so we know, thanks to Global, our voice was heard.