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| Help and Support - A-T National Clinics - Nottingham | Change Text Size |
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NOTTINGHAM CLINIC The A-T Society is pleased to announce that from the 1st April 2009, the clinic will be funded on a national basis by the National Commissioning Group for Highly Specialised Services on behalf of the NHS. The clinic is run as a partnership between the NCG, Nottingham University Hospitals NHS Trust and the Society. This marks a significant step forward in advancing the clinical management of A-T and therefore the quality of life and length of life of those who have the condition. The Clinic is held several times a year. Each Clinic is held over two days (a Thursday and Friday) and takes place at the Children’s Development Centre, Nottingham City Hospital. Patients and their families attend both days. Six patients are seen per Clinic. Those who have A-T, AOA1 (Ataxia Oculomotor Apraxia) and ‘A-T Like’ conditions are invited to attend. This national centre was established by the Society in 1993. Dates for 2010 are:
The Clinic is multi-disciplinary because A-T is a complex condition. Consultations will include the following specialties:
The Clinic is intended to be complimentary to local care arrangements and allows all the concerns of the family to be addressed at a ‘one stop shop’ by interested and highly experienced staff. There are close links with the A-T Society, the A-T Clinical Center in the USA and a number of research groups. Reports Reports and any recommendations are sent to the local care team. Accommodation Overnight accommodation is arranged for families in nearby hotels. Please contact the Family Support Worker Kay (01582 760733, email: kay@atsociety.org.uk) so that this can be arranged. Assistance with expenses can be provided if necessary. Referral If you wish to make an appointment at the Clinic referrals can be made through the Society or directly to the Hospital. Through the Society: families or clinicians - please contact Kay Atkins, Family Support Worker, A-T Society on 01582 760733 or email:kay@atsociety.org.uk. Directly to the Hospital: families may prefer to ask their GP or specialist to refer them directly. Clinicians may also refer directly if they wish. The referral should be addressed to: Dr M Suri Clinical Genetics Service The Gables, Gate 3 NUH NHS Trust City Campus Hucknall Road Nottingham NG5 1PB ph: +44 (0) 115 962 7728 fax: +44 (0) 115 962 8042 Link Nottingham City Hospital: www.nuh.nhs.uk/nch/ |
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